Addie is the daughter of our friend and employee, Rachel, who was diagnosed with an extremely rare genetic disorder called a “rasopathy” at 4 months old. Her particular mutation and diagnoses are completely unique to her. She struggles with tumor growth, rheumatoid arthritis, immune deficiency disorder, a lung disease, orofacial granulomatosis, a lymphatic malformation, and a vascular malformation disease. She has had more than 50 surgeries, too many scans and tests to count, numerous hospital stays, and thousands of doctor appointments. She currently receives treatment at Helen DeVos Children’s Hospital, and The Children’s Hospital of Philadelphia.